From Webster's Dictionary:
1. Intractable: a) hard to manage; unruly or stubborn b) hard to work, manipulate, cure, treat, etc.
From Epilepsy Foundation (.org):
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. When a person has two or more unprovoked seizures, they are considered to have epilepsy.
Intractable: Seizures that do not respond to medications. Thirty percent of people with epilepsy have these kinds of seizures. Also known as "drug resistant." The International League Against Epilepsy (ILAE) defines drug resistant epilepsy as "a failure of adequate trials of two tolerated and appropriately chosen and used AED schedules (whether as monotherapies or in combination) to achieve sustained seizure freedom."
Most authors report that antiepileptic drugs provide complete control for more than half of all patients with epilepsy, and reduce the number of seizures in another 20 to 30 percent. The remaining 20 percent do not respond to current medications and their condition is termed "intractable" or "refractory to treatment." Some of these people may have other treatment options, such as surgery, or (in children) the ketogenic diet.
Ben's diagnosis...still...after 9 different medications, 2 endoscopic brain surgeries, 5 MRIs, a dozen or so EEGs, 3 different genetic tests, extensive blood work, metabolic testing, ketogenic diet...and there will be more to come because Chet and I must press on, even though the way is hard, until we have gone the distance.
My constant prayer these days is:
If any of you lack wisdom, let him ask of God, that giveth to all liberally, and upbraideth not; and it shall be given him. But let him ask in faith, nothing wavering. For he that waverth is like a wave of the sea driven with the wind and tossed.
There is nothing like a morning seizure to toss me about like a wave of the sea!
Yet...
how sweet that word is in the Word of God:
Although the fig tree shall not blossom, neither shall fruit be in the vines; the labor of the olive shall fail, and the fields shall yield no meat; the flock shall be cut off from the fold, and there shall be no herd in the stalls:
Yet I will rejoice in the LORD, I will joy in the God of my salvation. The LORD God is my strength, and He will make my feet like hinds' feet, and He will make me to walk upon mine high places.
Heavenly Father, please make Benjamin's feet like hinds' feet that he may walk upon Thy high places.
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