A Benjamin Update

Ben's seizure count is ever so slowly creeping up each month that goes by. He is still having seizure free days, Thank God. He is most definitely teething, the larger teeth both top and bottom coming in. Of course, Chet and I desire a stronger seizure control that can weather these storms.

His EEG report came back, "somewhat better than last time, no right side abnormalities, left side abnormalities persist but less frequent than prior, no sub clinical seizures seen," The left side abnormalities are spikes that indicate seizure activity could happen.

Lab results came back fine, he is still making very high ketones, higher than they like to see at our Keto Clinic, however glucose, electrolytes...are still okay. His medication levels (the two medications that can be measured) are low and are considered barely therapeutic.

Our Keto neurologist is on vacation for two weeks, so Chet and I elected to hang tight until she returns to discuss our next step. We are definitely keeping the diet for now, but would like to try and achieve complete seizure freedom for Ben, balancing this with giving him the optimal opportunity to develop. He is sooooooo trying to crawl, but his tone is still very low. So once again, we wait, prayerfully he will not take any sharp downward turns.

When peace like a river attendeth my way, when sorrows like sea billows roll; whatever my lot, thou hast taught me to say, "It is well, it is well with my soul."
Though satan should buffet, tho' trials should come, let this blest assurance control, that Christ has regarded my helpless estate, and hath shed His own blood for my soul.
My sin...O, the bliss of this glorious thought, my sin...not in part but the whole, is nailed to the cross and I bear it no more, Praise the Lord, Praise the Lord, O my soul!
And, Lord, haste the day when the faith shall be sight, the clouds be rolled back as a scroll, the trump shall resound and the Lord shall descend, "Even so"...it is well with my soul.