I have been using my free-time to study and meditate upon the word of God, which has not left much time to blog, nor study and meditate upon my circumstances...which has been very good for me! So, I do not notice how tired I am from being sleep deprived, how defeated I can feel in this battle against epilepsy, and how the routine of my life just sort of blends together in what can seem like one unending chore. I am resting in this promise today, that all of this in our 'here and now' is working together for good according to God's gracious purpose for our lives.
God's word helps me to see His Grace day to day. I should not try and live without it!
Benjamin has been well. We are now almost two weeks into a medication increase. His sleep is very sporadic. He will often wake up in the middle of the night crying/screaming in his sleep. Sometimes he can be consoled quickly, other times not. But his days are good. The medication increase definitely is 'dulling' him a bit, but he still works very hard at exploring his environment. In fact, I am impressed by his tenacity to accomplish something, considering what effort it takes due to the medications and his low muscle tone. We haven't seen much change in his seizure frequency, he is still averaging about 3-4/week, but I do think they have decreased in intensity, just a little.
We now go outside the home three times a week for physical, occupational, and speech therapy; and we have in-home physical therapy once a week...so his schedule is quite full. Benjamin loves it. He loves travelling in the car (though on the med. inc. he often falls asleep). He loves impressing the ladies (therapists) with his commando "crawling" and playing with all their very cool and fun toys.
James has been doing very well in school, helping dad around the house, and enjoying the late night bonfires they have on weekends. He is still very much into mining...hence this supply list he made. He wants his dad to take him up north, Moosehead Lake region, for some gold exploration. He has already informed me he wants a pick axe for Christmas!
| We have been working on "self-feeding." Keto note: the avocado is the perfect keto food as it is naturally 4:1 ratio of fat:carbohydrate! |
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